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Baby’s Breath is Canada’s only national organization focused on sudden unexpected infant & childhood deaths, including SIDS, SUDC and stillbirth. Baby’s Breath provides support for families faced with the traffic loss of an infant or young child. They advocate for the needs of these families, as well as for the need for more research into the causes of these deaths. They educate the public on how to reduce their infant’s exposure to risks. The death of an infant is a devastating event not only for the parents, but for the entire family. Siblings, grandparents, aunts, uncles, cousins and friends are all affected by the sudden death of a baby. Baby’s Breath believes no one should endure the grief of such loss alone. They are there to help.
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The Missouri Eating Disorders Association’s mission is to bring hope, compassion and understanding to the fight against eating disorders. We are committed to providing education, resources and advocacy that will change the conversation around eating disorders. We strive to bring understanding and support to those treating or affected by this terrible and serious disease.
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Faith’s Lodge supports parents and families coping with the death of medically complex condition of a child in a peaceful environment to reflect on the past, renew strength for the present, and build hope for the future. They help families through their darkest hours by creating a nurturing setting together with other parents who are coping with the same struggles. Set apart from daily life and surrounded by the calming North woods of Wisconsin, families at Faith’s Lodge are supported in an emotionally safe environment. The lodge accommodates up to eight families at a time and operates year-round serving either couples or families on designated dates. After 11 years, Faith’s Lodge is still the only dedicated retreat facility of its kind in the country. Faith’s Lodge has served over 9,000 people from 40 different states. To learn more or to register for a programming weekend, visit www.faithslodge.org.
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The mission of Lucy’s Love Bus™ is to improve quality of life for children with cancer and life-threatening illness, to support their families, and to mobilize the next generation of cancer activists. Lucy's Love Bus pays for integrative therapies for children with cancer in New England, and holds programs and workshops in Amesbury, MA open to the families of children with cancer, life-threatening illness, or chronic medical conditions not developmental in nature.
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Peter’s Place is a center for grieving children and families located in Radnor, PA. At our center, we offer age-appropriate peer support groups for children ages 4–17. While the children meet, their parents and caregivers have an opportunity to participate in their own peer support group. Additionally, Peter’s Place offers a group for young adults, ages 18-25, and a specialized peer support group called Ryan’s Hope, which is for parents who have experienced the death of a child as a result of addiction.
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Actively Moving Forward, a HealGrief program is a nonprofit organization dedicated to supporting grieving college students.
1 in every 3 college students are grieving a loved one’s death or the diagnosis of a loved one’s terminal illness! The organization accomplishes its mission by creating Actively Moving Forward chapters on college campuses nationwide. AMF, an acronym for ActivelyMovingForward connects and empowers these grieving students to support one another and participate in community service in memory of their loved ones. Students are given the tools to cope, and the education to understand that grief is normal; grief is not depression; suicide is never an option; and a healthy grief recovery does exist.
AMF also supports non-collegiate young adults and professionals working with college students and young adults by creating a wealth of virtual information, programming, and community.
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The PA Tourette Syndrome Alliance is a non-profit organization that promotes awareness and acceptance, provides education, and assists families, schools and communities while advocating for individuals with TS. The services provided by PA-TSA are focused on increasing understanding of the disorder and providing proven accommodations and strategies so a child or adult diagnosed with TS can succeed. Tourette Syndrome can be a very complex disorder and many people do not have a full understanding of these complexities. PA-TSA's programs and services include providing information, education, support and disability advocacy. They strive to promote understanding of Tourette Syndrome in order to promote acceptance of those diagnosed!
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The Missouri Eating Disorders Council, in collaboration with appropriate organizations and stakeholders, in addition to the Departments of Mental Health, Health and Senior Services, Elementary and Secondary Education and Higher Education, will lead the development of eating disorders education, awareness and research initiatives throughout the state, and promote increased access to treatments supported by clinical practice guidelines (i.e., considering the relevant scientific literature, as well as the potential harms and benefits of treatment for each case).1-3
The Council will focus on children, adolescents, and adults with anorexia nervosa (AN), bulimia nervosa (BN), binge eating disorder (BED), atypical AN, sub threshold BN, sub threshold BED, and avoidant/restrictive food intake disorder (ARFID). These are the major diagnostic categories included in DSM-5.4 It will include the sub threshold diagnoses (atypical AN, sub threshold BN, sub threshold BED) because patients with these disorders demonstrate levels of distress and/or impairment similar to full-syndrome AN, BN, and BED.5
Eating disorder awareness, detection, prevention, treatment and recovery is of paramount importance and must start early. Early intervention is linked to better treatment outcomes, but requires enhanced awareness and screening.6 The Council will focus on helping professionals to recognize individuals with eating disorders and individuals at high risk for developing an eating disorder (e.g., those with high weight/shape concerns or low levels of compensatory behaviors).7-8 The Council will advocate for increased access to care for this population, as well as promote early intervention and prevention programs and recovery supports.
The absence of adequate coverage for treatment is a critical barrier to access to care for the patient.9 The high costs of medical complications, disability, and loss of life are significant health concerns.10-12 The Council will advocate for third party reimbursement for eating disorders, including coverage through private and public insurance plans.
The Council will work with identified partners, including state departments, to develop an eating disorders awareness program that targets patients with eating disorders as well as non-patient community members. This program will be designed to communicate that eating disorders are serious illnesses that require complete treatment, and to foster recognition of eating disorder symptoms and support for seeking treatment. The objectives of the awareness program are to educate Missouri citizens on the true and serious nature of the disease, dispel myths on who is affected, drive early intervention and encourage appropriate treatment for those suffering or those at risk.
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Open to Hope ® is a non-profit with the mission of helping people find hope after loss. We invite you to read, listen and share your stories of hope and compassion.
The Open to Hope Mission:
Helping people find hope after loss.
Our Vision:
To provide an online forum to support people who have experienced loss: to help them cope with their pain, heal their grief and invest in their future.
Website Definition:
OpentoHope.com is an online website where people can share inspirational stories of loss and love. We encourage our visitors to read, listen and share their stories of hope and compassion.
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Youthspace.ca is a free online crisis & emotional support chat service for youth under 30 across Canada. We listen without judgement, and keep chats confidential & anonymous. We encourage and welcome all youth to chat in, no matter their background, religion, race, ability, sexual orientation, gender identity, lifestyle or culture. Our goal is to create inclusive and safer spaces for all visitors to Youthspace.ca. We don’t give advice because we believe everyone is resourceful, capable and has the right to make their own decisions. We will help you explore ideas, options, supports and resources. We’re here to help you build and access strategies for coping with life’s many challenges.
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