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Babies affected with Turner Syndrome require a lifetime of specialized care beyond the pediatric setting. Obstacles often impede an early diagnosis for girls to receive critical health screenings and timely, life-altering, interventions. The Foundation’s advocacy efforts identify these gaps and give voice to leaders who can make a difference. The vision to improve the understanding of TS and to render support for women and children living with TS is made possible by advancing communications and inspiring relevant interest in this women’s health issue. Legislative advocacy, education, and research are cornerstone to improved outcomes. For more information about Turner Syndrome, please visit https://turnersyndromefoundation.org/welcome/ or call 1-800-594-4585.
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The Yellow Pages for Kids User Guide will teach you how to be a more effective advocate. Learn how to build your team, get educated about your child's disability, find special education advocacy training, locate a parent group, and get legal and advocacy help.
You may also want to subscribe to The Special Ed Advocate, the free online newsletter from Wrightslaw.com. Subscribe or learn more by clicking here.
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Focused on continuing and expanding our support of children and families affected by grief through its Camp Erin Program and addiction through Camp Mariposa, The Eluna Network has launched a comprehensive online library of carefully curated resources that provide the tools to navigate some of life’s most challenging experiences.
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Distress and Crisis Ontario (DCO) is an association that is the recognized leader in promoting collaboration and building capacity in organizations that provide distress and crisis response.
Distress Centres (DC’s) across Ontario offer support and a variety of services to their communities. At a DC you can find a listening ear for lonely, depressed, and/or suicidal people, usually 24 hours a day, 7 days a week. Many centres also have Suicide Survivor programs, support services for youth, telephone call out programs for seniors and vulnerable people, mental health Crisis Lines services and much more.
Distress Centres provide their listening and referral services primarily through highly trained and committed volunteers. The staffs of Distress Centres are knowledgeable individuals who insure the highest levels of support to the individuals in their communities and innovation in service provision.
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Our Vision: People First Through Service, Advocacy, Respect, and Choice - A vision for leadership in service and advocacy for individuals with developmental disabilities.
San Andreas Regional Center recognizes the ongoing need for advocacy to sustain the original intent and promise of the Lanterman Developmental Disabilities Act and commits itself to protecting its provisions.
San Andreas Regional Center strives for community partnership and excellence in customer service with its well-trained staff and service providers who use up-to-date technology, are good at what they do and are committed to this vision.
San Andreas Regional Center enables the individuals it serves and their families to determine what happens in their lives.
San Andreas Regional Center fulfills this vision through respect for the people it serves and their families, friends, service providers, agencies, staff, and community.
San Andreas Regional Center accomplishes this vision through an organization that is trusted, responsive, supportive, creative, proactive, well-managed, and people friendly.
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The Star Legacy Foundation is a 501(c)(3) non-profit organization dedicated to reducing pregnancy loss and neonatal death and improving care for families who experience such tragedies. We are a community of families, health professionals, researchers, policy makers, and individuals dedicated to helping every pregnancy have a happy ending.
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Established in 1908, Mental Health Connecticut (MHC) is the longest standing nonprofit organization dedicated to the improvement of mental health for the residents of our state. With facilities in Stamford, Bridgeport, Danbury, Waterbury, Torrington, and West Hartford, we are committed to delivering the highest quality services to our program participants as well as providing resources and information to the general public through our community education offerings.
Since its founding, MHC has been a leader in mental health reform through its advocacy efforts on both the state and federal levels. Following in the footsteps of our founder, Clifford W. Beers, we’ve continued to push toward a future where individuals with mental health conditions are treated fairly and have access to the key supports for wellness: Home, Health, Purpose, and Community.
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STAR Institute is the premier
treatment, research and education
center for children and adults with
Sensory Processing Disorder (SPD). This includes feeding disorders and other disorders with sensory issues such as autism and ADHD.
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Wings-a Grief Education Ministry is a 501 c-3, non-profit, charitable organization founded by Nan & Gary Zastrow in 1993 with the express purpose of helping others understand the impact of loss/grief in one’s life. The organization supports and educates by listening, teaching, and sharing grief experiences that honor the past and rebuild the future. It offers workshops, seminars, support/education groups, and articles to heal the pain of loss. Current information is posted at their website.
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Julie Maida has been in abstinence-based recovery since May of 2000, and has worked in the field of addiction since. In 2012, after the birth of her youngest son, she battled a severe bout of postpartum depression, OCD, and agoraphobia; which made it impossible for her to keep up with her 12 step recovery responsibilities.
Julie realized how much recovery support can often depend on regular meeting attendance, and how lonely it can feel without such support. She started thinking about women who, for whatever personal reasons, choose not to attend 12 step meetings or do not practice complete abstinence. She wondered if they felt as lonely in their process as she did at that moment.
In May of 2013, she “came out” about her personal recovery in a post titled I Got Sober Today. The post received an incredible response, and alerted Julie to the need for a supportive, judgment-free community for moms in and contemplating recovery.
Julie believes ALL women deserve to have a supportive and encouraging tribe. She created Sober Mommies to connect women with a diverse, inclusive community and to help moms build their personal recovery tribe.
The members of Sober Mommies understand the unique struggle, guilt and shame often associated where substance use/abuse and motherhood collide. Sober Mommies offers a platform for sharing stories, promoting identification and self-forgiveness, and an opportunity to receive and provide peer-to-peer support and mentorship.
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