Out of the FOG was launched in 2007 to provide information and support to the family members and loved-ones of individuals who suffer from a personality disorder. Dealing with a loved-one or family member who suffers from a personality disorder can sometimes feel like navigating through a fog. FOG stands for Fear, Obligation, Guilt - feelings which often result from being in a relationship with a person who suffers from a Personality Disorder. The FOG acronym was coined by Susan Forward & Donna Frazier in their book Emotional Blackmail. It is our hope that this site may help some navigate out of the FOG in their own lives. (Read More...)
Our Vision: People First Through Service, Advocacy, Respect, and Choice - A vision for leadership in service and advocacy for individuals with developmental disabilities. San Andreas Regional Center recognizes the ongoing need for advocacy to sustain the original intent and promise of the Lanterman Developmental Disabilities Act and commits itself to protecting its provisions. San Andreas Regional Center strives for community partnership and excellence in customer service with its well-trained staff and service providers who use up-to-date technology, are good at what they do and are committed to this vision. San Andreas Regional Center enables the individuals it serves and their families to determine what happens in their lives. San Andreas Regional Center fulfills this vision through respect for the people it serves and their families, friends, service providers, agencies, staff, and community. San Andreas Regional Center accomplishes this vision through an organization that is trusted, responsive, supportive, creative, proactive, well-managed, and people friendly. (Read More...)
The Yellow Pages for Kids User Guide will teach you how to be a more effective advocate. Learn how to build your team, get educated about your child's disability, find special education advocacy training, locate a parent group, and get legal and advocacy help. You may also want to subscribe to The Special Ed Advocate, the free online newsletter from Wrightslaw.com. Subscribe or learn more by clicking here. (Read More...)
Support. Research. Hope. The mission Cure SMA Canada Society is: To fund the best possible Canadian research in search of a treatment or cure for Spinal Muscular Atrophy. To support Canadian families and individuals affected by Spinal Muscular Atrophy in every province and territory. To work closely with CURE SMA (USA) and the Scientific Advisory Board in our selection of recipients of research and trial grant monies. To offer and supply information to any Canadian requesting it. To support Canadian families and individuals affected by SMA as newly diagnosed, during the affected person’s lifetime and the family after an affected person passes. To offer support for activities that bring families and individuals together mutually benefitting all that are involved. (example: the annual SMA conference, SMA Family Camp, Parent’s retreat) To support individuals with their fundraising activities benefitting Cure SMA Canada. To supply members with newsletters for the purpose of information, connecting and communication. To connect families to each other through various methods including our website, social media, through our national office, our newsletter and group activities. To help families realize they are not alone with the diagnoses of SMA. That Cure SMA Canada is here for them and will support them in any capacity we can. We understand, because we too are affected by SMA or are parents of children born with Spinal Muscular Atrophy. (Read More...)
Girl Power 2 Cure - Rett University is a 501(c)(3) organization chartered to raise funding to support: 1. Rett Syndrome treatment and curative research 2. General family resource and emotional support of children/families affected by Rett Syndrome 3. Educational programs for disabled and non-verbal children suffering from Rett Syndrome and other debilitating neurological conditions (Downs Syndrome, CP, Angelman Syndrome, Autism, etc.) which limit their ability to communicate, read, and write in traditional classroom settings (includes teacher and professional training/seminars for therapists and other specialists targeting services to complex-needs individuals). Note: Rett Syndrome is a debilitating neurological condition which predominantly affects females, robbing them of the ability to speak, walk, or use their hands. It is caused by a random genetic mutation on the X-chromosome. 1 in 10,000 girls are affected, without regard to race, origin or any other common factor. (Read More...)
The PA Tourette Syndrome Alliance is a non-profit organization that promotes awareness and acceptance, provides education, and assists families, schools and communities while advocating for individuals with TS. The services provided by PA-TSA are focused on increasing understanding of the disorder and providing proven accommodations and strategies so a child or adult diagnosed with TS can succeed. Tourette Syndrome can be a very complex disorder and many people do not have a full understanding of these complexities. PA-TSA's programs and services include providing information, education, support and disability advocacy. They strive to promote understanding of Tourette Syndrome in order to promote acceptance of those diagnosed! (Read More...)
Family Resource Center on Disabilities (FRCD) is a training center that provides parents of children with disabilities with information, training, assistance, and support. FRCD helps a wide variety of families and professionals on local, state, and national levels every day through informational workshops, phone trainings, and community outreach. We help you communicate more effectively with school professionals, obtain appropriate services for your child, effect positive change in your child’s school. You can call us at (312)939-3513 or send an e-mail to info@frcd.org. Our office hours are from Monday thru Friday 9 am to 5 pm. Visit our website at us online at www.frcd.org (Read More...)
Facing Disability is a web resource with more than 1,000 videos drawn from interviews of people with spinal cord injuries, their families, caregivers and experts. (Read More...)
Claire’s Place Foundation, Inc. is a 501(c)(3) non-profit organization providing support to children and families affected by cystic fibrosis (CF). Claire’s Place Foundation is named in honor of Claire Wineland who lived with CF her entire life and passed away at the age of 21. Claire was an activist, author, TEDx Speaker, social media star and received numerous awards. Claire’s foundation was a way for her to assure that others living with CF enjoyed the same hope, strength and joy that she enjoyed. Recipient of Los Angeles Business Journal’s “Small Nonprofit of the Year,” the foundation provides grants to families affected by CF, offering both emotional and financial support. Today, Claire’s Place Foundation continues to carry on Claire’s legacy. For more information visit www.clairesplacefoundation.org (Read More...)
Founded in 2002, For Grace’s main goal is to increase awareness and promote education of the gender disparity women experience in the assessment and treatment of their pain. We believe empowering women to be better consumers for their pain management care, sensitizing the general public to gender pain disparities and enlightening public policy makers about pain as a major health issue will improve life outcomes for all women in chronic pain. Also, we see increased medical research about the differences in how men and women experience pain as part of the answer to alleviating the toll of human suffering. We believe medical research will pave the way for gender-specific therapies that will better manage persistent pain. (Read More...)