The PA Tourette Syndrome Alliance is a non-profit organization that promotes awareness and acceptance, provides education, and assists families, schools and communities while advocating for individuals with TS. The services provided by PA-TSA are focused on increasing understanding of the disorder and providing proven accommodations and strategies so a child or adult diagnosed with TS can succeed. Tourette Syndrome can be a very complex disorder and many people do not have a full understanding of these complexities. PA-TSA's programs and services include providing information, education, support and disability advocacy. They strive to promote understanding of Tourette Syndrome in order to promote acceptance of those diagnosed! (Read More...)
Out of the FOG was launched in 2007 to provide information and support to the family members and loved-ones of individuals who suffer from a personality disorder. Dealing with a loved-one or family member who suffers from a personality disorder can sometimes feel like navigating through a fog. FOG stands for Fear, Obligation, Guilt - feelings which often result from being in a relationship with a person who suffers from a Personality Disorder. The FOG acronym was coined by Susan Forward & Donna Frazier in their book Emotional Blackmail. It is our hope that this site may help some navigate out of the FOG in their own lives. (Read More...)
Claire’s Place Foundation, Inc. is a 501(c)(3) non-profit organization providing support to children and families affected by cystic fibrosis (CF). Claire’s Place Foundation is named in honor of Claire Wineland who lived with CF her entire life and passed away at the age of 21. Claire was an activist, author, TEDx Speaker, social media star and received numerous awards. Claire’s foundation was a way for her to assure that others living with CF enjoyed the same hope, strength and joy that she enjoyed. Recipient of Los Angeles Business Journal’s “Small Nonprofit of the Year,” the foundation provides grants to families affected by CF, offering both emotional and financial support. Today, Claire’s Place Foundation continues to carry on Claire’s legacy. For more information visit www.clairesplacefoundation.org (Read More...)
Girl Power 2 Cure - Rett University is a 501(c)(3) organization chartered to raise funding to support: 1. Rett Syndrome treatment and curative research 2. General family resource and emotional support of children/families affected by Rett Syndrome 3. Educational programs for disabled and non-verbal children suffering from Rett Syndrome and other debilitating neurological conditions (Downs Syndrome, CP, Angelman Syndrome, Autism, etc.) which limit their ability to communicate, read, and write in traditional classroom settings (includes teacher and professional training/seminars for therapists and other specialists targeting services to complex-needs individuals). Note: Rett Syndrome is a debilitating neurological condition which predominantly affects females, robbing them of the ability to speak, walk, or use their hands. It is caused by a random genetic mutation on the X-chromosome. 1 in 10,000 girls are affected, without regard to race, origin or any other common factor. (Read More...)
Founded in 2002, For Grace’s main goal is to increase awareness and promote education of the gender disparity women experience in the assessment and treatment of their pain. We believe empowering women to be better consumers for their pain management care, sensitizing the general public to gender pain disparities and enlightening public policy makers about pain as a major health issue will improve life outcomes for all women in chronic pain. Also, we see increased medical research about the differences in how men and women experience pain as part of the answer to alleviating the toll of human suffering. We believe medical research will pave the way for gender-specific therapies that will better manage persistent pain. (Read More...)
Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD), is a national non-profit, tax-exempt [Section 501(c)(3)] organization providing education, advocacy and support for individuals with ADHD. In addition to our informative website, CHADD also publishes a variety of printed materials to keep members and professionals current on research advances, medications and treatments affecting individuals with ADHD. These materials include Attention magazine, Attention weekly, a free electronically mailed current events newsletter, as well as other publications of specific interest to educators, professionals and parents. (Read More...)
The Yellow Pages for Kids User Guide will teach you how to be a more effective advocate. Learn how to build your team, get educated about your child's disability, find special education advocacy training, locate a parent group, and get legal and advocacy help. You may also want to subscribe to The Special Ed Advocate, the free online newsletter from Wrightslaw.com. Subscribe or learn more by clicking here. (Read More...)
Since 1980, the ACPA has offered peer support and education in pain management skills to people with pain, family and friends, and health care professionals. The information and tools on our site can help you to better understand your pain and work more effectively with your health care team toward a higher quality of life. (Read More...)
The U.S. Pain Foundation is the leading advocacy organization for people with pain. Its mission is to empower, educate, connect, and advocate for individuals living with chronic illness that causes pain, as well as their caregivers and clinicians. Through multiple programs and services, the U.S. Pain Foundation works to enhance the quality of life for people with pain, improve patient outcomes, address access and affordability issues, and increase public awareness and empathy for the issue of pain. The U.S. Pain Foundation is an independent nonprofit 501(c)(3) organization. (Read More...)
Facing Disability is a web resource with more than 1,000 videos drawn from interviews of people with spinal cord injuries, their families, caregivers and experts. (Read More...)